Turning a condition into a mission

Interview with Stefanie De Jonghe 

Childhood epilepsy has a huge impact on daily family life. It also challenges your feelings as a parent. Stefanie De Jonghe, chairperson of Steunpunt Kinderepilepsie - a Flemish non-profit organisation focused on childhood epilepsy - knows what she’s talking about. Six years ago her daughter, Lenie, was diagnosed with a severe form of epilepsy. Stefanie gives us an honest and touching account of her daily family life and tells us more about the Steunpunt Kinderepilepsie’s mission and activities.

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Topics: epilepsy, absence, living with epilepsy, awareness, familiy, impact on family, support group, support, unsteady agenda, uncertainty

Being different

No other child is as beautiful as your own, that's for sure. Epilepsy doesn't change that. But that doesn't stop  comparisons being drawn between friends and classmates and this at times can lead to difficult realisations. Suzanne, Machteld, Krist, and Peggy share their story.

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Topics: epilepsy, absence, living with epilepsy, awareness, school, class, confrontations

Taking care of yourself

Life is filled with beautiful moments. The nice experiences, the good memories. Absence epilepsy does not change that. Life however sometimes entails darker periods. Hard times, the difficult situations and confrontations. And yes, the latter ones may occur more often due to the disorder. That is why it is incredibly important for a parent to take time for oneself, some “me-time”. Accept outside help, share your concerns, grant yourself a little extra. All without any feeling of guilt. Self-care is essential to make life with absence epilepsy bearable. Some parents testify, read their stories below.

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Topics: epilepsy, self-care, support, stressful, absence, living with epilepsy, familiy, self-awareness, awareness, support group

New classification of epileptic seizure types (Prof Dr Lagae)

 Clarity for better diagnosis and therapy 

In 2017 the International League against Epilepsy (ILAE) published a new classification of epileptic seizure types. Prof. dr. Lieven Lagae, pediatric neurologist at UZ Gasthuisberg and Chairman of the European Pediatric Neurology Society, highlights the importance of the new classification and clarifies what is truly "new".

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Topics: epilepsy, absence, seizure, neurologist, diagnosis, treatment, seizure type, motor onset, focal onset