Leading a life as a young adult with epilepsy is challenging and confronting. We spoke to two women about the specific challenges in their lives. Sarah (41), who has focal impaired awareness seizures and Sue (65) with juvenile myoclonic epilepsy, share their stories and their three biggest challenges when they were a young adult.
Topics: epilepsy, life questions, impact on family, self-care, self-awareness, living with epilepsy, familiy, pregnancy, employment, idiopathic refactory epilepsy, idiopathic generalized epilepsy
Epihunter is used by children, young people, and adults. In this interview, we meet Philippe (52) from Antwerp, Belgium. He has been using epihunter for some time and shares his story with us - from his first seizure to his new daily approach and the lessons of his epilepsy.
Topics: absence, testimonials, seizure, uncertainty, unpredictable, neurologist, diagnosis, self-care, self-awareness, living with epilepsy, epihunter, apps
Life is filled with beautiful moments. The nice experiences, the good memories. Absence epilepsy does not change that. Life however sometimes entails darker periods. Hard times, the difficult situations and confrontations. And yes, the latter ones may occur more often due to the disorder. That is why it is incredibly important for a parent to take time for oneself, some “me-time”. Accept outside help, share your concerns, grant yourself a little extra. All without any feeling of guilt. Self-care is essential to make life with absence epilepsy bearable. Some parents testify, read their stories below.
Topics: absence, epilepsy, self-care, stressful, self-awareness, support, living with epilepsy, familiy, support group, awareness