Many people with epilepsy experience social isolation. One of the most common causes is the fear of potential embarrassment if a seizure occurs and this often prevents people with epilepsy from attending social functions or sharing their story with others. Simon Privett from the UK is an example of the contrary. Simon is actively involved in a number of initiatives and uses both face-to-face meetings and social media to engage with others affected by epilepsy. Later this year, he will be awarded with the prize Volunteer of the Year by Epilepsy Action. In this interview, Simon shares his story and work within the epilepsy community.
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Topics:
epilepsy,
impact on family,
support,
living with epilepsy,
familiy,
support group,
awareness,
epihunter,
research support,
epilepsy action,
social media
Ring Chromosome 20 syndrome, also known as r(20), is an ultra-rare condition, the first symptom of which is usually epilepsy. Due to the delayed onset of the signs of the syndrome and the difficulties in identifying it, no true statistics for r(20) exist. This isn’t good enough for Allison Watson, co-founder of Ring20 Research & Support UK CIO. Here, she explains why.
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Topics:
epilepsy,
impact on family,
support,
living with epilepsy,
familiy,
support group,
awareness,
epihunter,
rare diseases,
r(20),
ring chromosone 20 syndrome,
research support
Epihunter is used by children, young people, and adults. In this interview, we meet Philippe (52) from Antwerp, Belgium. He has been using epihunter for some time and shares his story with us - from his first seizure to his new daily approach and the lessons of his epilepsy.
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Topics:
absence,
testimonials,
seizure,
uncertainty,
unpredictable,
neurologist,
diagnosis,
self-care,
self-awareness,
living with epilepsy,
epihunter,
apps
Do you remember the 1990s? At that time the main reasons for having a mobile phone were calling, texting, and playing Snake. Today, we use our phone to track our diet, to measure our heart rate, and to plan our rehabilitation. Our international sales and community manager, Hogne, dives into the topic of ‘Mobile Health’.
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Topics:
epihunter,
artificial intelligence,
health care,
mhealth,
personalised care,
digital health,
smartphone
Epihunter as a promising Health Tech solutions provider
About 4 months ago Epihunter won the Jury award for Innovation at Health&Care 2018. End of June we presented our solution at the Healthtech Summit in Lausanne after being nominated by industry as one of the 40 most promising health tech startups in Europe. All this is linked to our mission to create digital solutions to make epilepsy matter less, and to our belief that current digital technologies can create a massive impact on the daily life of people with epilepsy.
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Topics:
epihunter,
deep learning,
machine learning,
artificial intelligence,
health care
