Leading a life as a young adult with epilepsy is challenging and confronting. We spoke to two women about the specific challenges in their lives. Sarah (41), who has focal impaired awareness seizures and Sue (65) with juvenile myoclonic epilepsy, share their stories and their three biggest challenges when they were a young adult.
Topics: epilepsy, life questions, impact on family, self-care, self-awareness, living with epilepsy, familiy, pregnancy, employment, idiopathic refactory epilepsy, idiopathic generalized epilepsy
Absence epilepsy affects everyday life on every level. Though many of us try to meet it with optimism, there is always that fear and anxiety. You make the most of every day, but never without precautions and a solid portion of routines. Below you can read how some parents approach the uncertainty that comes with absence seizures.
Topics: absence, future, life questions, unsteady agenda, uncertainty, unpredictable, impact on family
As a big brother, Frederik can cope with Ine’s epilepsy. He is very responsible and caring. If the family goes on a trip, he is the one who asks: "Mom, did you not forget Ines pills?" - "As if that’s the concern of a thirteen-year-old" - sighs his mother, Karen.
Topics: absence, seizure, children, future, life questions, unsteady agenda, uncertainty, unpredictable, impact on family