--- title: Epihunter Stories | unsteady agenda description: unsteady agenda | --- **[+32 11 94 86 05](tel:+32%2011%2094%2086%2005)  |  [LOGIN](https://my.epihunter.com)** [![Epihunter](https://blog.epihunter.com/hs-fs/hubfs/EpiHunter_October2018/images/download.png?width=1500&height=301&name=download.png "Epihunter")](https://blog.epihunter.com/) - [Home](https://www.epihunter.com) - [Product](https://www.epihunter.com/product) - [Professionals](https://www.epihunter.com/professionals) - [Community](https://www.epihunter.com/community) - [Stories](https://blog.epihunter.com/en) - [About us](https://www.epihunter.com/about-us) - [Team](https://www.epihunter.com/team) - [FAQs](https://www.epihunter.com/support) - [Teleconsult tips](https://www.epihunter.com/tips-to-prepare-a-teleconsultation) - [Press](https://www.epihunter.com/press) - [Shop](https://www.epihunter.com/shop) ## [Turning a condition into a mission](https://blog.epihunter.com/en/a-condition-into-a-mission) - [Tweet](https://twitter.com/share) [![Photo: Thomas Sweertvaegher](https://blog.epihunter.com/hubfs/Stefanie-De-Jonghe-1-c-Thomas-Sweertvaegher-e1497011163647.jpg)](https://blog.epihunter.com/en/a-condition-into-a-mission) ### Interview with Stefanie De Jonghe *Childhood epilepsy has a huge impact on daily family life. It also challenges your feelings as a parent. Stefanie De Jonghe, chairperson of Steunpunt Kinderepilepsie - a Flemish non-profit organisation focused on childhood epilepsy - knows what she’s talking about. Six years ago her daughter, Lenie, was diagnosed with a severe form of epilepsy. Stefanie gives us an honest and touching account of her daily family life and tells us more about the Steunpunt Kinderepilepsie’s mission and activities.* [Read More](https://blog.epihunter.com/en/a-condition-into-a-mission) Topics: [absence](https://blog.epihunter.com/en/tag/absence), [epilepsy](https://blog.epihunter.com/en/tag/epilepsy), [unsteady agenda](https://blog.epihunter.com/en/tag/unsteady-agenda), [uncertainty](https://blog.epihunter.com/en/tag/uncertainty), [impact on family](https://blog.epihunter.com/en/tag/impact-on-family), [support](https://blog.epihunter.com/en/tag/support), [living with epilepsy](https://blog.epihunter.com/en/tag/living-with-epilepsy), [familiy](https://blog.epihunter.com/en/tag/familiy), [support group](https://blog.epihunter.com/en/tag/support-group), [awareness](https://blog.epihunter.com/en/tag/awareness) ## [Always that fear](https://blog.epihunter.com/en/always-that-fear) - [Tweet](https://twitter.com/share) [![iStock-178430155-1](https://blog.epihunter.com/hubfs/iStock-178430155-1.jpg)](https://blog.epihunter.com/en/always-that-fear) *Absence epilepsy affects everyday life on every level. Though many of us try to meet it with optimism, there is always that fear and anxiety. You make the most of every day, but never without precautions and a solid portion of routines. Below you can read how some parents approach the uncertainty that comes with absence seizures.*  [Read More](https://blog.epihunter.com/en/always-that-fear) Topics: [absence](https://blog.epihunter.com/en/tag/absence), [future](https://blog.epihunter.com/en/tag/future), [life questions](https://blog.epihunter.com/en/tag/life-questions), [unsteady agenda](https://blog.epihunter.com/en/tag/unsteady-agenda), [uncertainty](https://blog.epihunter.com/en/tag/uncertainty), [unpredictable](https://blog.epihunter.com/en/tag/unpredictable), [impact on family](https://blog.epihunter.com/en/tag/impact-on-family) ## [What does the future bring?](https://blog.epihunter.com/en/what-does-the-future-bring) - [Tweet](https://twitter.com/share) [![ago\_civicoo-444](https://blog.epihunter.com/hubfs/ago_civicoo-444.jpg)](https://blog.epihunter.com/en/what-does-the-future-bring) *As a big brother, Frederik can cope with Ine’s epilepsy. He is very responsible and caring. If the family goes on a trip, he is the one who asks: "Mom, did you not forget Ines pills?" - "As if that’s the concern of a thirteen-year-old" - sighs his mother, Karen.* [Read More](https://blog.epihunter.com/en/what-does-the-future-bring) Topics: [absence](https://blog.epihunter.com/en/tag/absence), [seizure](https://blog.epihunter.com/en/tag/seizure), [children](https://blog.epihunter.com/en/tag/children), [future](https://blog.epihunter.com/en/tag/future), [life questions](https://blog.epihunter.com/en/tag/life-questions), [unsteady agenda](https://blog.epihunter.com/en/tag/unsteady-agenda), [uncertainty](https://blog.epihunter.com/en/tag/uncertainty), [unpredictable](https://blog.epihunter.com/en/tag/unpredictable), [impact on family](https://blog.epihunter.com/en/tag/impact-on-family) [All posts](https://blog.epihunter.com/en/all) ### RECEIVE OUR NEWSLETTER ### Recent Posts ## [All blog posts](https://blog.epihunter.com/en) #### Would you like to share your story or experiences? Do you or someone close to you have (absence) epilepsy; parent, sister, brother or best friend ... Do you have a story that says something about "life with absence epilepsy" or do you want to share a special experience, **use the form** underneath a blog post. No need to worry, your story can be as anonymous as you want. - [HOME](https://www.epihunter.com) - [PRODUCT](https://www.epihunter.com/product) - [PROFESSIONALS](https://www.epihunter.com/professionals) - [COMMUNITY](https://www.epihunter.com/community) - [STORIES](https://blog.epihunter.com/en) - [ABOUT US](https://www.epihunter.com/about-us) - [TEAM](https://www.epihunter.com/team) - [FAQs](https://www.epihunter.com/support) - [TELECONSULT TIPS](https://www.epihunter.com/tips-to-prepare-a-teleconsultation) - [SHOP](https://www.epihunter.com/shop) Farow nv Kempische Steenweg 303/200 - 3500 Hasselt - Belgium [info@epihunter.com](mailto:info@epihunter.com) [Privacy Policy](https://www.epihunter.com/privacypolicy) [Terms of Use](https://blog.epihunter.com/hubfs/terms-of-use.pdf?hsLang=en-us) \*names of parents and children were changed © 2026 Farow -  epihunter All rights reserved.