--- title: What does the future bring? description: Living with absence epilepsy. That is uncertainty, every day. About the agenda of today, the planning of next week, and especially about the future. How do parents deal with this uncertainty? How do they answer questions about the future? Karen, Daisy, Marc and Anja talk about it. image: https://blog.epihunter.com/hubfs/ago_civicoo-444.jpg --- **[+32 11 94 86 05](tel:+32%2011%2094%2086%2005)  |  [LOGIN](https://my.epihunter.com)** [![Epihunter](https://blog.epihunter.com/hs-fs/hubfs/EpiHunter_October2018/images/download.png?width=1500&height=301&name=download.png "Epihunter")](https://blog.epihunter.com/) - [Home](https://www.epihunter.com) - [Product](https://www.epihunter.com/product) - [Professionals](https://www.epihunter.com/professionals) - [Community](https://www.epihunter.com/community) - [Stories](https://blog.epihunter.com/en) - [About us](https://www.epihunter.com/about-us) - [Team](https://www.epihunter.com/team) - [FAQs](https://www.epihunter.com/support) - [Teleconsult tips](https://www.epihunter.com/tips-to-prepare-a-teleconsultation) - [Press](https://www.epihunter.com/press) - [Shop](https://www.epihunter.com/shop) # What does the future bring? Posted by [Tim Buckinx](https://blog.epihunter.com/en/author/tim-buckinx) on 9 May 2018, 16:00:00 ![](https://blog.epihunter.com/hubfs/Tim_Epihunter_indiegogo2.jpg) - [Tweet](https://twitter.com/share) *As a big brother, Frederik can cope with Ine’s epilepsy. He is very responsible and caring. If the family goes on a trip, he is the one who asks: "Mom, did you not forget Ines pills?" - "As if that’s the concern of a thirteen-year-old" - sighs his mother, Karen.* ### **Uncertainty, every day** #### **Cancel plan Efteling** Also his teachers find Frederik more mature than his peers. *"And yet,"* Karen says. *"Also he remains a child who, with moments, has difficulties. Also he deserves care and attention."* Karen does everything to avoid that Frederik misses attention. Like planning a family day at the Efteling last Saturday. At least, if Ine’s absence seizures hadn’t suddenly changed the plan. Seizures the night before and the subsequent tiredness threw a spanner in the works. No loops and pan cakes for Frederik. Cancel plan Efteling. #### **Mom, can I learn to drive?** Daisy, Gert's mother, also recognizes how difficult it is to make plans and promises, or to look forward to the future. That is not only true for plans for today. Especially future prospects make life with absence epilepsy hard. *"Life events that appear almost natural to other children aren’t evident for Gert,"* Daisy testifies. *"Yesterday, Gert asked me if he could learn to drive a car. He will soon turn eighteen. At the moment, Gert is not able to drive a car. But, you never know, maybe later? What do you answer? Could I say that driving a car is rather something for later? You don’t want to give your child false hopes, but you don’t want to disappoint it in the eyes either."* Do you recognize this struggle? #### **Cohousing?** Every family has its own future questions. Marc and Anja, Tom’s parents, have one they share with lots of other parents: The care about where Tom will live one day. *"We want Tom to be a bit independent. But, what is the best? A house with friends? There must be continuous guidance then. Maybe that is too complex? Cohousing?"* Absence epilepsy is so complex. The progress of the condition difficult to estimate. That’s why the 7-year trajectory from Tom's birth until now has already been very unpredictable. Marc and Anja try not to worry too much and think positively. But still, the question gnaws. How do you deal with it? ### **Do you recognize this?** Do you recognize the doubts and uncertainty about what the future brings? **Do you have a similar story to tell? Do you want to share an experience?** Whether you have (absence) epilepsy, or someone in your immediate environment: a parent, sister or brother, best friend or neighbor. Every story touching the topic "living with" absence epilepsy, and every experience, small or large, can be incredibly recognizable to others. [Mail us](mailto:info@epihunter.com) these stories. We give them attention! No need to worry, your story can be as anonymous as you want. **Thanks** to the parents who already shared their story and hence, gave substance to this blog. ### **Why we do what we do** 1 out of 3 people with epilepsy suffer from uncontrollable seizures despite medication. We believe current digital technologies are able to create massive impact to the daily life of people with epilepsy. At [Epihunter](https://www.epihunter.com/) we create digital connected solutions to make epilepsy matter less at moments that matter most. Our first solution is for children with silent, difficult to notice absence seizures. ### **Let’s think together!** Are you a parent of a child with absence seizures? Let’s get in touch! Do you know other parents? Tell them about[Epihunter](https://www.epihunter.com/). The more families we hear, the better! This way we learn about and understand their needs better so we create the right solutions for the right needs. ### **Staying informed? Having comments?** Subscribe on[our website](https://www.epihunter.com/) to stay informed. Send us an [email](mailto:info@epihunter.com) for all other comments! Thank you for your feedback!! Topics: [absence](https://blog.epihunter.com/en/tag/absence), [seizure](https://blog.epihunter.com/en/tag/seizure), [children](https://blog.epihunter.com/en/tag/children), [future](https://blog.epihunter.com/en/tag/future), [life questions](https://blog.epihunter.com/en/tag/life-questions), [unsteady agenda](https://blog.epihunter.com/en/tag/unsteady-agenda), [uncertainty](https://blog.epihunter.com/en/tag/uncertainty), [unpredictable](https://blog.epihunter.com/en/tag/unpredictable), [impact on family](https://blog.epihunter.com/en/tag/impact-on-family) ### RECEIVE OUR NEWSLETTER ### Recent Posts ## [All blog posts](https://blog.epihunter.com/en) #### Would you like to share your story or experiences? Do you or someone close to you have (absence) epilepsy; parent, sister or brother, best friend or neighbour... Do you have a story that says something about "life with absence epilepsy" or do you want to share a special experience, tell us. Mail to [info@epihunter.com](mailto:info@epihunter.com) and we'll place it on our blog! No need to worry, your story can be as anonymous as you want. - [HOME](https://www.epihunter.com) - [PRODUCT](https://www.epihunter.com/product) - [PROFESSIONALS](https://www.epihunter.com/professionals) - [COMMUNITY](https://www.epihunter.com/community) - [STORIES](https://blog.epihunter.com/en) - [ABOUT US](https://www.epihunter.com/about-us) - [TEAM](https://www.epihunter.com/team) - [FAQs](https://www.epihunter.com/support) - [TELECONSULT TIPS](https://www.epihunter.com/tips-to-prepare-a-teleconsultation) - [SHOP](https://www.epihunter.com/shop) Farow nv Kempische Steenweg 303/200 - 3500 Hasselt - Belgium [info@epihunter.com](mailto:info@epihunter.com) [Privacy Policy](https://www.epihunter.com/privacypolicy) [Terms of Use](https://blog.epihunter.com/hubfs/terms-of-use.pdf?hsLang=en-us) \*names of parents and children were changed © 2026 Farow -  epihunter All rights reserved.